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Rare Disease Day Poem 2019 - "Show Your Rare!"

TODAY IS RARE DISEASE DAY
Proud and Honored to be a part of this Amazing project , advocating for my rare disease Cerebellar Ataxia is important to me,as it is for the others in this video who have different ones .Please share it with hashtags #showyourrare#rarediseaseday #rarediseaseday2019 ,also try and find me in video .

Rare Disease Day Poem 2019 - "Show Your Rare!"

Proud and Honored to be a part of this Amazing project , advocating for my rare disease Cerebellar Ataxia is important to me,as it is for the others in this video who have different ones .Please share it with hashtags #showyourrare#rarediseaseday #rarediseaseday2019 ,also try and find me in video .

Official Show Your Rare video for Rare Disease Day 2019 (English Subtitles)

Michael J. Fox: Parkinson's "sucks"

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Almost Boss: The Longest Running Tribute Band in the World

I spent over a decade working with this band as a roadie / tech / DJ at private events , a part of my life I will never forget bstreetband​

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BON JOVI / In These Arms (Osaka, Japan 2018)

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Harry Nilsson - Try, Try, Try

The late Harry Nilsson wrote and recorded ,Try, Try , Try right before his unexpected Death ,he had become clean and Sober after substance abuse in the 60's, I like the fun in his voice and message he wanted to send .

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