Thursday, February 28, 2019
Rare Disease Day Poem 2019 - "Show Your Rare!"
TODAY IS RARE DISEASE DAY
Proud and Honored to be a part of this Amazing project , advocating for my rare disease Cerebellar Ataxia is important to me,as it is for the others in this video who have different ones .Please share it with hashtags #showyourrare#rarediseaseday #rarediseaseday2019 ,also try and find me in video .
Wednesday, February 27, 2019
Rare Disease Day Poem 2019 - "Show Your Rare!"
Proud and Honored to be a part of this Amazing project , advocating for my rare disease Cerebellar Ataxia is important to me,as it is for the others in this video who have different ones .Please share it with hashtags #showyourrare#rarediseaseday #rarediseaseday2019 ,also try and find me in video .
Monday, February 4, 2019
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