Rare Disease Day 2015 Official Video

“going to my friends memorial mass today in the town I grew up in, haven’t been back in a long time, lots of memories”

My Tribute to a friend I grew up with- Thomas "Moose" Hurley

I heard devastating news a friend who I grew up with died suddenly , Thomas “Moose” Hurley. In our youth we spent a lot of time hanging out, we lost touch the past 10+ years but the memories from “Growin Up” in North Arlington , NJ will stay with me always, life gets in the way as we get older. Moose was 51yrs old, had a loving family, and friends, not much more I could say but RIP my longtime Friend - John “JC” Colyer

Some Affirmations and Quotes

"Entertaining your fantasies is one thing; how you live your life is something else."

Watched "Sons of Anarchy" for the First time , kind of reminded me of the Republicans in Congress of the United States of America

"I pay Tribute to myself by the actions I take" - John “JC” Colyer

"we must keep trying our best, we are all we got" - John “JC Colyer

"Never doubt your potential, the key is , Patients, Faith & Consistency" - John “JC” Colyer http://

“Watched “Sons of Anarchy” for the First time , kind of reminded me of the Republicans in Congress of the United States of America”

“Watched “Sons of Anarchy” for the First time , kind of reminded me of the Republicans in Congress of the United States of America”

17 Things You’ll Only Understand If You Have A Rare Disease

In the 21st Century will the role a Politician be exposed as hateful due to social media ?

In the 21st Century will the role a Politician  be exposed as hateful due to social media ? I think yes, the closed door rants are now made public by cell phone recording apps & posting on Social Media.

'Miracle on Ice' Hockey Team Reunites

6,000 people take frigid plunge, raise $1.6M for Special Olympics

6,000 people take frigid plunge, raise $1.6M for Special Olympics

POLAR BEAR PLUNGE **TODAY** in Seaside Heights! 1pm <:>http://www.seasideheightsnjonline.com/Events.htm < (Ocean County) #polarbear2015

Video Blog 133 by John "JC" Colyer

Try not to let your actions today be your regrets tomorrow

Some Affirmations and Quotes

"I pay Tribute to myself by the actions I take" - John “JC” Colyer


"we must keep trying our best, we are all we got" - John “JC Colyer


"Putting all the puzzle pieces in their proper places requires persistence and faith"


"Life will always try to make things difficult for you, but every time you overcome obstacles, you come out stronger"

"In this business you can’t leave uncomfortable things unsaid. U have to toss the rose coloured glasses & see truth"

2015 Polar Bear Plunge - Seaside, NJ - Home

2015 Polar Bear Plunge - Seaside, NJ - Home

2015 Polar Bear Plunge - Seaside Heights Saturday, February 21st, 1:00 PM

February 20th- Online Registration Closes. All team members must be registered with their team by midnight. Team members will not be able to register with their team the day of the event.

February 21st- On-Site Registration will be $125 the day of the Plunge. 

The event benefits Special Olympics NJ 

info @ http://www.seasideheightsnjonline.com/Events.htm

Some Affirmations and Quotes

“In my youth they called it teasing, today bullying , I made it through”

—	John “JC” Colyer “Surround yourself with only people who are going to lift you higher.” —  Oprah Winfrey

“As kids we act, as adults we regret”

—	John “JC” Colyer “Losers are those whose words are bigger than actions. Winners are those whose actions are bigger than words”

My Diagnosis

I was diagnosed with undetermined cerebellar Ataxia in 2007,Ataxia (from Greek α- [a negative prefix] + -τάξις [order] = "lack of order") is a neurological sign consisting of lack of voluntary coordination of muscle movements. Ataxia is a non-specific clinical manifestation implying dysfunction of the parts of the nervous system that coordinate movement, such as the cerebellum. Several possible causes exist for these patterns of neurological dysfunction. Dystaxia is a mild degree of ataxia. Friedrich's ataxia has ataxia of gait as the most common presenting symptom.I have had 3 brain MRI's.  In a re-port from ny 1st MRI in 2007, a word sticks out,Cerebellar  Hypoplasia, my PCP googled it,Hypoplasia means, Hypoplasia (from ancient Greek ὑπo- hypo-, "under" + πλάσις plasis, "formation"; adjective form hypoplastic) is underdevelopment or incomplete development of a tissue or organ.^[1] Although the term is not always used precisely, it properly refers to an inadequate or below-normal number of cells.^[2]Hypoplasia is similar to aplasia, but less severe. It is technically not the opposite of hyperplasia (too many cells). Hypoplasia is a congenital condition, while hyperplasia generally refers to excessive cell growth later in life. (Atrophy, the wasting away of already existing cells, is technically the direct opposite of both hyperplasia and hypertrophy.)

Hypoplasia can be present in any tissue or organ. It is descriptive of many medical conditions, including underdevelopment of organs, Cerebellum is , The cerebellum (Latin for "little brain") is a region of the brain that plays an important role in motor control. It may also be involved in some cognitive functions such as attention and language, and in regulating fear and pleasure responses,^[1] but its movement-related functions are the most solidly established. The cerebellum does not initiate movement, but it contributes to coordination, precision, and accurate timing. It receives input from sensory systems of the spinal cord and from other parts of the brain, and integrates these inputs to fine tune motor activity.^[2] Cerebellar damage produces disorders in fine movement, equilibrium, posture, and motor learning.

I Have been un cordinated my whole life, my speech is slurred, as a youth I drank alcohol and used recreational drugs to self medicate, I was never alone, most blamed that. I stopped Alcohol cigarettes & all recreational drugs in 2001, my condition still progressed, now I know it was from birth. I have adapted to my Disability & will live a long life with it.